Invisible Cost of Disability on Siblings – A Maternal Perspective.

Abstract:

This qualitative phenomenological study examined the lived experiences of mothers raising children with developmental disabilities in Ikono, Nigeria, with particular attention to the psychosocial impact on their neurotypical children. Through in-depth interviews with 22 mothers, the research revealed four major themes: the emotional toll and pervasive maternal guilt, the marginalization of siblings, disruption in family and marital cohesion, and the presence of resilience and hope amid adversity. The findings reveal that the intensive demands of caregiving often lead to the unintended sidelining of siblings, who experience emotional withdrawal, academic struggles, and a premature sense of responsibility within the household. Mothers voiced deep regret over their inability to adequately balance attention across their children, noting signs of distress and feelings of invisibility among siblings. The caregiving burden also contributed to marital tension and significant financial strain, compounding the overall stress within the family unit. Despite these challenges, many mothers demonstrated remarkable resilience, drawing strength from religious faith, peer support, and a persistent hope for systemic change. This study emphasizes the pressing need for holistic, family-centered support systems that recognize the hidden emotional costs of disability caregiving. It calls for targeted mental health interventions for siblings, increased institutional support for caregivers, and inclusive policy frameworks that address the well-being of all family members affected by developmental disabilities in under-resourced settings.